MOMENTAN AUSVERKAUFT
Über dieses Produkt
Product Identifiers
PublisherMIT Press
ISBN-100262548151
ISBN-139780262548151
eBay Product ID (ePID)2332289478
Product Key Features
Number of Pages336 Pages
LanguageEnglish
Publication NameLong Haul : How Long Covid Survivors Are Revolutionizing Health Care
Publication Year2024
SubjectPublic Health, Physician & Patient, Diseases / Chronic Fatigue Syndrome
TypeTextbook
Subject AreaHealth & Fitness, Medical
AuthorRyan Prior
FormatTrade Paperback
Dimensions
Item Height0.8 in
Item Weight12.9 Oz
Item Length9 in
Item Width6 in
Additional Product Features
Intended AudienceTrade
LCCN2023-030212
TitleLeadingThe
Reviews"Carefully constructed, beautifully written, and well documented and researched, The Long Haul compiles narrated accounts of people living with COVID's long tail, unraveling the history, the science, and the politics involved in this chronic condition. Prior shines a spotlight on the aftermath of Long COVID and gives voice to the millions affected worldwide, challenging researchers to increase their awareness of research done on other post-viral illnesses. The volume makes a call to action for health care providers and patient-rights and advocacy groups to bond together, find support in each other, and take more active roles in their own patient-centered care, affecting study design and health care policy reform." -- Choice, "Carefully constructed, beautifully written, and well documented and researched, The Long Haul compiles narrated accounts of people living with COVID's long tail, unraveling the history, the science, and the politics involved in this chronic condition. Prior shines a spotlight on the aftermath of Long COVID and gives voice to the millions affected worldwide, challenging researchers to increase their awareness of research done on other post-viral illnesses. The volume makes a call to action for health care providers and patient-rights and advocacy groups to bond together, find support in each other, and take more active roles in their own patient-centered care, affecting study design and health care policy reform." -- Choice "Prior's striking narrative tells the political story of long COVID, beginning with patient organizing from the early days of the COVID-19 pandemic and weaving this narrative together with his personal story of living with a chronic post-viral condition." --The Lancet
Table Of ContentContents Preface to the Paperback Edition 9 1 A Future in Jeopardy 13 2 A Surprising Problem 27 3 A Groundswell of Patient Activism 43 4 Patients Become the Experts 72 5 A Lifelong Mission 90 6 We Predicted This 117 7 Covid for Christmas 131 8 Unraveling the Mystery 147 9 The NIH Goes Big 162 10 Gaslighting, Disbelief, and the Search for Answers 177 11 Chronicles of Uncertain Recoveries 195 12 Precursors: ME/CFS and Lyme 203 13 Theory of Everything 220 14 A New Epidemic of Disability 246 15 The ePatient Revolution and Crowdsourcing Research 263 16 Expectant Hope 277 Acknowledgments 289 Notes 293
SynopsisHow survivors of the Covid-19 pandemic battling long-term disabling conditions are fighting for recognition and research--and helping to transform healthcare for many overlooked diseases. To the world's public health authorities, Covid-19 would be either a deadly disease for some or a simple respiratory illness for most, its symptoms clearing up in just a matter of weeks. But then tens of millions around the world got sick and stayed sick. With scientists and doctors caught off guard, these Long Covid patients often found solace only with one another, organizing support groups across oceans and continents while ill in bed. In The Long Haul , CNN journalist Ryan Prior weaves his own life, the stories of activist patients, and the latest science into a captivating tale of regular people crying out for care that actually works. What Covid "long haulers" found was that their new illness was not so new. In fact, it resembled other post-viral syndromes: difficult to treat and neglected by science. In riveting and accessible prose, Prior follows an innovative band of patients who took matters into their own hands and researched the disease themselves, thereby flipping the script and illustrating a new paradigm for research. In these unprecedented times, the CDC and the WHO came to them. As Covid continues to circulate, its long-term effects could grow as well, weighing on the healthcare system for decades to come. But, as Prior shows, getting Long Covid treatments right could help revolutionize care for all complex and chronic illnesses.
LC Classification NumberRA644.C67
